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Wellington, New Zealand
welcome to my corner of the blog world! i love zumba, scrapbooking, photography, watching movies, walking the hills of my suburb, my family, and life in wellington. take some time to have a look around and be sure to say hi!

Tuesday, August 26, 2014

and now for the photo-heavy catch up

may was a blur and mostly spent at home recuperating, but there were doctor's visits, weekly blood tests and what seemed like twice weekly hospital visits.  in ONE short week i'd been to the hospital more times than i'd been in the entire 31 years i've lived in wellington!

our local GP is now a familiar destination, which is a big change for hubby who hadn't been to the doctor in SEVEN. YEARS.

Men.  seriously.  take better care of yourselves...

10 days after the surgery, he was now legend at our local GP practice and this student doctor was very excited to take Clive's blood pressure.  

eventually life returned to [our new] normal, and in no particular order, this is what we've been up to in the past 3 months

pink t-shirt anti-bullying zumba class

#4 daughter playing in the A netball team
juggling netball AND rowing during the winter has been a challenge for her
one that she's risen to


her school fancy dress (3 days ago)



interview day for this event where i'll be volunteering


zumba kept us sane


#3 daughter got a new weekend job
that kinda got lost in the 'late april blur'
in fact she found out she'd been offered the job while her dad was in surgery
never has our enthusiasm for something one of our daughters has achieved been so lacklustre!


mothers' day.
considering i was meant to be in sydney drooling over michael buble that weekend, our girls did well to 'throw' together this awesome basket of goodies for me


zumba.  more wonderful zumba
my first few classes back were actually quite hard because i was SO distracted and felt guilty for being away from home, but with each class i went to, it got easier to be there; and they were an absolute necessity for my mental health!


culinary studies continued and when her class was in the production kitchen, we came and ate in the restaurant.  proud mama moment, especially when the maitre d comes over and tells you what a great kid you've got


where would we be without our needy cats eh...


note paws firmly planted on my phone


 trying to type here...


there was that one time we ran out of coffee beans

that made me sad (and cranky)


french-themed high tea


 i did eventually get that mini break in sydney
and boy did i need it

i treated myself to a night in a nice hotel
this was my view

i got to catch up with family 


eat these pork buns


 and this edible work of art

oh my...

and have fun with benefit cosmetics
(which aren't available in my city)


i tried my first ever BARRE ATTACK class


it was awesome

think ballet-meets-pilates-meets-yoga


and it was tara's birthday - YAY!



 i bought these boots


back home there was a night out that included line dancing with my zumba girls


i discovered the joys of distress products and made time to scrap


our family enjoyed the benefits of 'bread week'
(#3 daughter's study)


but not NEARLY as much as we enjoyed the bread that came packed with chocolate and custard...


we won the prize for 'best sideline family support at netball'
(ok i made that up, but if there WAS an award, we totally would've won it)


my dad got to see his favourite football team in action
(westham)


there were mini celebrations along the way
(the final resolution of a stalled wound post-surgery)


more scrapbooking


milestones like getting back on his motorbike 


more high tea


this time a chocolate-themed one


rowing season started


wellington turned on a fine day for the first local regatta - yay


a 'casual' 8 kilometre row to the airport and back


#3 daughter got her restricted drivers' licence


remember when #2 daughter went to berkeley?
she left something (or someone behind)

he just left after a 2-week visit
we approve


then yesterday my baby turned 25!!!!!


this is a text i got from her this morning:

"oh god, i just realised i've moved up an age bracket!  no longer 18-24 *sad face*"


i replied:

"that's how i felt when i was no longer 40-49!!!!!"


-----


...and as if our future wasn't looking bright enough, in 2 weeks' time we will have high tea here:


stay here

then jump on this


 and go here


then here


and lots of other places too!!!



some updates are a bit more serious than others

there have been occasions where i haven't updated my blog for over 4 months, but i usually come back with a photo-heavy catch up showcasing my various proud mama moments and fun times i've had with my friends.

that WILL happen later, but for now i'm going to start with the
WORST. DAY. OF. MY. LIFE.

...and i can say that without reservation; because when your husband comes within a hair's breadth of dying and needs 10 and a half hours of surgery to save his life, and you still don't know whether he'll be ok, that literally IS the worst day of your life.

there have been several occasions in the past 4 months where i've attempted to journal this story, and i know that when i eventually got around to doing it, that it would be different than if i'd started it earlier, and that's ok.

writing it now means that i can tell the story knowing that it has a happy ending.

thank goodness.


when i posted this picture on Facebook on May 30, i wrote:

my husband ladies and gentlemen: version 2.0

it was a VERY long way from this photo - taken only 5 weeks earlier



SO...

on april 23rd of this year whilst at rest on the sofa after dinner, my husband of 29 ½ years calmly laid down his iPad, lent forward and clutched his chest.

he didn't sit right back up.

it's a strange feeling, that even when you KNOW something like this has NEVER happened to you, in that moment you know it's real, it's different and you need to take action.  it's also when time stands still, or moves very slowly.  maybe it's the universe's way of telling you that things will never be the same and that you need to be present.

it was less than 2-3 minutes before i realised that we needed to call an ambulance.  he hadn't sat back up and gone 'phew, that was weird!' his breathing was laboured and he was in pain.

from our st john ambulance days, i/we knew it wasn't a heart attack (which was comforting), but NOT knowing what it was left us with the opposite feeling.

the ambulance arrived within 10-12 minutes.
the longest 10-12 minutes of my life.

wellington FREE ambulance [thus named] is the only free ambulance service in the country - and man they are AWESOME.

it was decided that we'd go to hospital to investigate further
in the absence of any obvious tell-tale signs of anything else, he was treated for severe heartburn and/or angina.

he walked halfway down the drive to the ambulance:
'tell the kids not to worry.  i'm fine'.

fast forward to the next morning (after a long night of monitoring and pain relief in the emergency room, then overnight in the short stay unit).  when the doctors did their rounds they scratched their heads and said "well, we still don't know what's wrong with you", so he had a CT scan.

BINGO.  finally a diagnosis


...and this is the text i got from my husband:

"CT Scan. tear in aorta. surgery.
will call soon".


(he's a no-fuss kinda guy)


he DID call - 10 minutes later, and i made plans to collect our 2 eldest girls and drive to the hospital to see him before his surgery.  my friend was going to bring the younger 2 over later in the day.

now, up until this point in my life, i'd not ever uttered the word 'aorta', let alone really KNEW what one was.  STILL, knowing my husband was going to have surgery THAT DAY was a lot to take in.  i drove myself to my friend's house for 'tea and sympathy' so i could gather my thoughts before collecting the girls and driving to the hospital.

NOW - this particular friend is a medical professional and she well knew how serious it was, but thankfully just made me tea, fed me ANZAC biscuits and wrapped me in a blanket until i stopped shaking.  weeks later i asked her if she'd known how serious it was.  her reply was "yes, but i prayed that it wasn't".


so we arrive at the hospital (to the emergency room where hubby had been returned) expecting to say 'hey, have a nice surgery', but we're met at the giant double doors by a doctor (wearing one of those serious, yet non-committal faces) who ushers us wordlessly into a darkened room.  in this room there's a random person making the SLOWEST CUP OF TEA EVER.  she doesn't know that these strangers are about to have bad news delivered to them by a nameless doctor and we all sit there in pained anticipatory silence.

when i look back at this moment i can see the 'comedy' in it.  we'd been lead into an unfamiliar room by an unfamiliar doctor and the poor unsuspecting sod who was casually making their tea had no idea she was part of a life-changing moment in the lives of these 3 strangers.

poor doctor 'S'.  my memory of her is so tainted because she knew EXACTLY what had happened to my husband but couldn't or wouldn't say, so she used LOTS of words and said ABSOLUTELY NOTHING.  she kept waffling on about how it's "very hard to save people like my husband when they're 'out in the community'". WHAAAAAAT???!!!

what she REALLY meant was: "if your husband had been at home instead of already in hospital, he'd be dead by now".

three weeks ago doctor 'S' celebrated her birthday at my katelin's bar/place of work.  she recognised katelin and said hello.  it's easy to forget these doctors have private lives and 'other' personalities!!!


at this point i still don't quite realise what's going on, although i DO appreciate the seriousness of the situation.  i DO know that i was a MOTHER first and foremost throughout this time, rather than a wife.  for me, it was just automatic.  you never know how you're going to act or respond in a crisis.  you can only hope that you'll cope and do the right thing.  managing your own emotions and reactions, as well as that of FOUR others, was probably my biggest challenge.

so the verbose doctor 'S' tells us that hubby has already been in surgery for 1 ½ hours!!! - and that it might be another hour (i think) and did we want to wait in the ICU waiting room.  i don't know!!!  by now i have one child that is a wreck, one holding it together and me - speechless - for probably the first and last time in my life!

we soon discover that the ICU waiting room is the most horrible, horrible waiting area possible.  poor seating configuration, sterile, seats along the edges and full of strangers who are also going through their own personal hell, but whom i want NOTHING to do with.  thankfully there's a massive space with tables and sofas right outside the ICU waiting room.  we moved the furniture, made ourselves comfortable, and waited.


and waited


and waited.



hours later a lovely nurse [that i deeply regret yelling at] comes out and tells us the surgery will be another 5 hours. (it was more like 8).

5 HOURS???
what could they POSSIBLY be doing that'll take 5 HOURS?

thankfully, not too much later Tom the anaesthetist phones from INSIDE the theatre (modern technology eh?)  he tells me they're replacing my husband's MAIN AORTIC VALVE.

VALVE?  NO-ONE SAID ANYTHING ABOUT A VALVE!!!!!!!
then i remember that my dad had a valve REPAIR in 2010 and that the surgery took hours.
ok i said - as you were, take all the time you need.  i can see why it's taking so long!

timings are a bit of blur, but we waited all afternoon and all evening
tom the anaesthetist finished his shift, came out to see us and drew us a rudimentary picture.  i'm not sure how much information i took in.
hours later, an ICU nurse came out and said that they were expecting my husband soon
"at least they're talking about him in the present tense mum" my eldest said.
i HATE that she even had to think that.

in the months since this has happened, i've said to Clive that i'll never wish it hadn't happened, because so much good has come from it, but i DO wish that our children never had to go through what they went through.

some time before midnight, the surgeon finally appears.  he asks if we can 'skooch' over [on the sofa] because he's been on his feet a while. haha.  he sketches a 2nd picture (again, i'm not sure how much i'm taking in).

he then proceeds to tell me all the things he [probably] needed to tell me, but not in the matter-of-fact manner i wanted to hear them, and CERTAINLY not uncensored and in front of my children:

that while the surgery was a success, that didn't necessarily mean that he was going to be ok, and that if certain things happened immediately post-surgery, then he definitely wouldn't be ok
(now I'M being cryptic), but some things are private you know?

...and then he left

if i was in the middle of the worst DAY of my life, that was the worst MOMENT.
thankfully it was short-lived, and i needed to attempt to comfort my children.
TWO hands, FOUR kids.  that's some bad math.

an image of a future very different to the one i'm living today briefly entered my mind but then i snapped back to the present.  when can we see him and how many of my girls actually WANT to see him. practical things.

the ICU staff were amazing.  it usually takes around an hour and half to 'settle' a patient after surgery, but it was approaching midnight and they wanted us to be able to see him so we could go home and get some sleep (HA!) i went in first with my friend and took a photo to show the girls so they could decide if they wanted to see him.

shock horror, i'm a practical creature! 
i knew i also had to photograph it for Clive, because he was one day into three days he'd never get back.

-----

so this is basically what happened:

an undiagnosed congenital defect (bicuspid valve instead of TRIcuspid) and undiagnosed [and therefore untreated] high blood pressure basically made him a ticking time bomb
sometime between 11.20am (when he called me) and 12.20pm (when the surgeon became 'aware' of him), that 'small tear' started to completely dissect and he became 'very sick' in the words of the cryptic doctor 'S'
less than 30 minutes later he was in theatre
he had an ACUTE ASCENDING AORTIC DISSECTION.
rare as they are, dissections are usually DESCENDING, and Clive's tore right up into the aortic arch and threatened the carotid artery.  this is ultimately why the surgery took so long.
he now has 26.5cm of dacron where he aorta once was, and a st jude's mechanical valve.
he ticks.  quite loudly.

-----

during the following week my parents came up and kept the house running
my zumba girls had taken over feeding us and meals (and other assorted treats) arrived daily.
people we hadn't heard from in YEARS contacted me
friends came and sat with us at the hospital and keep us company during the long hours and days waiting outside ICU

and so we got through it

-----

after less than 72 hours in ICU and 5 days on the ward, he made an [almost] textbook recovery and was home 8 days after the surgery.  8 DAYS.

-----

so here's what i know (and have learned, and am grateful for):

- first world medicine
- the medical profession (specifically nurses).  let's be honest, they run the place!
- friends
- friends with medical knowledge
- family
- Facebook (as a means of communicating to the masses)
- a husband who was young and fit at the time of his surgery

-----

...and here's what they don't tell you
(probably because public health doesn't have endless resources available)

an incident like this is a 'traumatic stress' (even if it DOESN'T come out of the blue)
1 in 4 will suffer some form of depression
recognise the signs and GET HELP

also:
one of the symptoms of a dissection is RADIATING pain to the back from the abdomen or chest.  Clive didn't have this which made diagnosis tricky.

-----

as it turns out, i started writing this on august 24,  4 months to the day of the surgery.
in 2 weeks' time, we leave for a month in europe to celebrate our 30th wedding anniversary
 (the main event being a 12-day greek island cruise).

i think we've earned it.